Tag: faith

SILVER LINING

by Maasaisis

I woke up feeling as if I’d been dragged behind a running horse. I had to keep my breath shallow so my ribs wouldn’t expand against the hot pain wrapping beneath my breast and around my back. I immediately sensed that something was terribly wrong. The reflection in the mirror confirmed my dread—a wide, bright, red welt wrapped around me on the outside of where I felt the pain inside. This significant change occurred rapidly during a disturbed sleep after a mind-fucker of a day. Perhaps my discombobulated state that day was a foreshadowing of what was to come.

Something was undoubtedly wrong, but it was Sunday. I’d been visiting the local oncology department regularly lately; the last thing I wanted was another hospital visit. In the blue welcome packet I received from the oncology nurse was a special neon pink skip-the-line slip. Having this slip was supposed to expedite any emergency visit for a cancer patient. Guess I might as well play my cancer card, I thought. I slung my arm around my husband, and he dragged my limp body into the ER like a big sack of potatoes.

There should be no contest to suffering; everyone in that room was suffering profusely. Slumped in the waiting room, overwhelmed with pain, fever, and nausea, I sobbed like a child, completely helpless. Even in that state of despair, the common thread of suffering in the ER connected me to a greater force. What bound me was compassion and the indivisible nature of suffering.

Hours had gone by with me in and out of consciousness by the time I was assessed and diagnosed. It turned out I had a staph bacterial infection that had spread from my tumour. Out of the bloodwork and cultures taken, one sample showed that it was in my blood. I was immediately put on IV antibiotics in hopes that I wouldn’t go into sepsis.

The doctor on duty did not have the best bedside manner. I could tell he was annoyed, dealing with a tedious patient and a case file he needed to comprehend thoroughly. ‘You’re in rough shape, and you’ve got a lot going on you should be concerned about,’ he said matter-of-factly. I didn’t have the energy to stand up for myself, a concern in itself. I just nodded and let him be who he was. He suggested trying to needle aspirate the pulsing red protrusion of my tumour in hopes of drawing out some infection. The last thing I wanted was this man sticking a giant syringe into my breast, but that is what happened, and unfortunately, there was no pus, only a bloody mess to show for it. Thankfully, that was the last I saw of him as I drifted in and out of delirium.

I slept in between bouts of nausea that would wake me up and bring me back to my predicament. Eventually, I was given the option to continue to stay in the ER or go home, as there was nothing more that could be done except continue IV antibiotics every 24 hours. I was torn between staying under the care of physicians and wanting to be in my own space with my family. I didn’t trust what my body was doing and was afraid of how compromised I felt. It was a terrifying feeling that I couldn’t shake even in the comforts of my home.

For the following 5 days, I continued to receive treatment in and out of the ER. The oncology nurse suggested I take a break from the targeted therapy drug I was taking in conjunction with the hormonal therapy medication. She told me that it’s an immunosuppressant and would hinder my healing from the staph infection. I suddenly understood what had most likely happened. I’d been on my cancer treatment plan for just over 2 weeks, during which time I was more immunocompromised than usual.

I’d been battling skin rashes and inflammation around my tumour for months. Fevers would come and go, but never did it cross my mind that the cause could be an infection. The oncologist waved it off as a cancer symptom, and I accepted the pain that came with it. I believe I’ve had this infection going on for a long time, and my immune system would fight it off every time it reared its ugly head. With the new medication that suppressed my immune system, it finally broke free into its full expression as a nasty staph infection.

I’m one to always look for the silver lining even amidst dire situations. Every day my body improved with antibiotics pumping through my veins. As the raspberry-red giant welt began to recede, I also noticed that the evidence of rashes that plagued me for months started to disappear. The pain in my breast slightly alleviated, which also has to do with the infection leaving my body. So even though this was a horrid experience building up for months, I’m grateful that it happened so that it could be addressed.

My way of being continues to morph through my experience with this disease. Time has stretched out like taffy, soft and malleable, unlike how I used to feel pressed up against it, always trying to stay ahead. I’m learning that I create my own suffering by planning how to fill the space of time. Life is happening to me in ways that I cannot control or predict. It’s asking me to be gentle and present with whatever is happening, and it requires a whole lot of compassion. To hold myself in high regard, to be worthy even when I’m responding to life from my couch.

LESSON: PATIENCE IS NOT WEAKNESS- Detective Katagiri from Tokyo Vice

The Roller Coaster Ride

by Maasaisis

I’m at the point where I am beginning to realize what I actually signed up for. It reminds me of that feeling on a roller coaster ride, steadily ascending to its highest peak and dreading every second of it. At the top, in the brief pause, I am forced to face the terrifying reality that there is absolutely nothing I can do to change what is about to happen. There’s no turning back, no changing my mind, and no amount of fight will alter the course of the next few minutes. The only thing left to do is to surrender.

My right breast is taut from pressure on the inside. It’s a likeness of a perfect grapefruit—swollen, round, and oddly perky. Under different circumstances, it might have fuelled my vanity, but it’s due to the palm-sized tumour underneath. Now visibly larger than its twin, it throbs and sends sharp, electric messages to surrounding areas.

I’ve had to adapt to this new reality. I’ve become a left-hearted hugger, a back sleeper, and I keep my right elbow at the ready to shield my throbbing breast from any kind of impact. I am adjusting to new ways to support my healing and sleeping as much as I need.

This mass resembles a slowly shifting continent, inching its way toward my armpit. Its relentless pull restricts the mobility of my shoulder and diminishes the strength in my arm. Everything I hold dear about myself finds expression through my hands. It’s not what I say but the authenticity of my hands that allows me to connect with people on the deepest level. As both an artist and masseuse, my hands serve as the language through which I communicate.

Though I should be celebrating the promising signs of healing that I’ve come to understand, it’s innate human nature to react to pain with fear and resistance. I am uncertain if the mass will eventually erupt to the surface or if it will become dormant after raising a ruckus. I remain to be my own test subject.

In recent weeks, the pain has intensified significantly. Every time I pressed my fingers to catch a hook in the tissue of the person I was massaging, I would feel a painful echo reverberating in my breast. It became a disruptive distraction to what is otherwise a practice of serenity and prayer.

This week, I finally arrived at the point where I had to release my massage practice. The decision left me grappling with the aftermath—my self-worth plummeted and landed on questions like : “Who am I if I can’t massage anymore? What if I can’t paint anymore? Who am I if I can’t use my hands?”

When the heart falls out of harmony, it recruits the mind to conjure up the worst-case scenarios. We do this in an attempt to prepare ourselves, even though most of these scenarios never materialize. It’s a convoluted way of trying to find comfort in situations beyond our control. While we’re entangled in these thoughts, life continues to move forward, often slipping by unnoticed. We miss the gifts of what each moment can bring us even though it may be uncomfortable.

The irony is that I’ve been praying for this to happen. I’ve been asking for my “biological program” to reach its completion. I’ve learned from German New Medicine that cells heal best in a warm, liquid environment. Healing brings swelling, heat, and yes, pain. It’s the body’s way of signalling us to rest, to refrain from using that part so it can mend itself. This is why we often reach the peak of discomfort, also known as a healing crisis, before the body can return to homeostasis.

Against my better judgment, my well-being is compromised by toggling between my worst fears and my faith in what I’ve learned in the last four years of this healing journey. Nevertheless, I continue to remind myself to extend forgiveness to the part of me that still falls prey to these “what-ifs.” The only way is through it. I always have the choice to embrace pain and the unknown with surrender and faith, trusting in my body’s innate ability to heal. There is always the right time to remember when I forget.

I’m grateful to be reminded of the opportunities within every obstacle. Now that I’m not massaging, I have more time for my creative projects that had been shelved. This newfound time allows me to nurture and listen to what my body needs. I’m embracing this journey, wherever it may lead me, much like taking a deep breath at the peak of a rollercoaster ride—relaxing and surrendering to the wild ride ahead.

LESSON: RELAX AND SURRENDER.