I thought that if I played by this new set of rules, I would be able to maintain at least some semblance of my old life. If I took a long enough nap late in the day, I should be able to gather enough energy to be in fine form for the flamenco show. That’s what I thought. What was supposed to be a short nap turned into over an hour. I peeled my eyes open, groggy and heavy. The voice inside said, ‘Get up, shake it off!’ so I put on my flamenco shoes and dragged myself into position to practice our set.
I noticed right away that the music was coming in muffled through my right ear, the one that’s been plugged periodically for the last couple of months. Nausea set in after my first spin, and every stamp of my nailed shoes reverberated through my bones. This distraction threw me offbeat, and suddenly, I had no idea what the next move was. I panicked and tried again, but my body lagged behind. I just couldn’t keep up.
The doctor said these medications would make me feel old, physically and mentally. The thought of getting ready for the show overwhelmed me. There are many voices arguing in my head: ‘Do it again, practice!’; ‘Just lay down, you’ll be okay’; ‘Forget it, who are you kidding?’; ‘Tough it out! Stop being dramatic!’ I fall into bed, sobbing uncontrollably because I know it’s not going to happen.
There is a tug of war between the part of me that is fighting for what I feel should be mine and having to let it go because I have to. The new set of rules is that it changes moment by moment. The lesson? There is no wisdom to be found in the midst of a messy meltdown. I only have this blank page to spew out my discontent because I need to let it out so I won’t implode. I’m angry that what I was looking forward to was snatched away from me. I’m grieving the fact that I can’t plan to look forward to something. I’m grieving the days lost in sleep.
I understand the lesson about letting go and living in the moment—an enlightening way to strive to be. I keep receiving this message repeatedly, but when the moment takes me away from what lights me up, I feel utterly defeated. Then, the guilt of admitting defeat drowns me under the wave of self-loathing. The internal conflict rages on – one side mothering the wounded child, the other seething and clinging to all that I used to be. One side yearning for a sense of control and predictability, the other acknowledging the futility of such desires on an unpredictable health journey.
People keep saying how strong, courageous, and beautiful I am. The truth is, that is how I used to see myself. That version of me is fading into something else that I can’t find. I don’t recognize what I’m morphing into, and it’s scary. I’m at that place that happens in every painting process—the place where I have no idea how to move forward, where everything doesn’t look right, and I don’t know how to fix it. I feel vulnerable and exposed in this stuck place. The only thing that keeps me going is trusting the process. If I just keep showing up in front of the canvas, something eventually shifts, and my whole perspective on the painting changes, allowing me to break the spell — to find beauty and meaning where it wasn’t before.
I know I will come up for air with a fresh look around. If not now, it will come. Thank God for my angel of a husband, who envelops me in his love no matter what state I’m in. Even when I want to push him away, he holds me until I eventually melt into him. He cries with me, and in doing so, he helps me open up the floodgates so I can just let it all rip, allowing me to feel everything just as it is.
LESSON: THE RULES CHANGE MOMENT TO MOMENT
LESSONS FROM MY LUMP 