Tag: health

POLKA DOT ORANGE LIGHTS

by Maasaisis

“I’m happy about your results,” my oncologist says over the phone. She’s relaying the radiologist’s report from my recent PET scan. I’m surprised by the felt sense of release, even though I had convinced myself that this time I wouldn’t let it get to me. I wouldn’t let the anticipation of the result become an invisible weight I carried. But it was still there. The difference is, I’m stronger now, and I can carry it without letting it drag me down.

Still, my light-as-a-feather release moment was short-lived. My quick translation of what she said was, “I’m done, I’m cancer free! Whoopee! Finally!!” But then she proceeded with what I didn’t want to hear which meant: it ain’t over yet.

The Coles Notes version is that there are lumpy remnants of disease bound up in my scar tissue. There are still a few small nodules left over from the breakdown of the big tumour. I focused on the positive: it’s no longer in my other breast, sternum, liver, lymph nodes, or in the suspicious activity that showed up in my right lung several months ago.

“There is a new lesion in your spine at T4 that we are going to have to keep an eye on,” she continued. It’s a game of give and take, and what is left over is where I have to count my blessings. My mind quickly grasped for an explanation.

I had two terrible falls last year where my heels went over my head and I smashed hard onto my back. Both involved slipping and landing on solid slabs of wet rock. The first time, I broke my fall with my left arm, which fractured my humerus and left me with a frozen shoulder I’m still patiently thawing out.

The second time was a classic ass-over-teakettle slip down the stone steps to my garden. That time I remember lying there motionless, afraid to move, praying that I hadn’t broken my back.

“Could a fracture or major trauma in that area cause a higher glucose uptake in the scan?” I ask. I can hear the desperation in my voice and feel my heart squeezing around panic. “It could,” she replies, “but the formal report says that it is likely a metastasis.”

This is how it starts: fear finds a crack to get in. If I look away and let it in, it will take hold—and that is what metastasizes and spreads. That is what alters my experience from being free to becoming a prisoner. I know I have to nip it in the bud—not with denial, but by shifting my awareness to a greater Reality that will guarantee my safety.

This is the thing: the radiologist is commenting only on the supposition in cases like mine. The last PET scan was done over a year ago, when the orange glows of sugar uptake in my report were polka dotted in too many places. Assuming that cancer “spreads,” all the orange glows led to the presumption that it was all cancer — even though healing tissue also takes up sugar. This is my own disclaimer on these super sensitive machines that pick up everything. I was never completely sure that was the case, but I didn’t want to biopsy bones and organs, so I went along with it, hoping it wasn’t as bad as it seemed. It was most likely denial, but at the time, it was the only defense I had to keep going.

The radiologist comments on my scarring as a “surgical site,” which it is not. The scar tissue was not from a clean cut surgery. I wanted him to know what I endured—that I didn’t have the option for a quick and easy removal of my problem. It’s more like a mesh of healed tissue from a decomposition site. I find it mildly annoying that the guy writing this report has no idea what I’ve been through and writes without considering my falls as a possible explanation for the T4 light-up. I recognize my annoyance is guarding what I want to keep safe, so I let it go with my next out breath.

My oncologist is thorough and pulls up the last three PET scans, spanning two years, to compare them on her screen. “Maasa, you really should see the changes in the imaging. You can literally see those orange globes of light around your body dissipating with each scan. I think you would feel really encouraged if you could see what I see,” she says. I love this woman, especially because she wants me to just keep doing what I’m doing. And even though there is no real end to talk about in terms of treatment, I decide that this is good news—because really, it doesn’t change anything. I can keep living the way I am.

I had decided I wouldn’t live suspended on “what ifs.” There will be more tests, and the only constant is change in whatever direction life flows, so I’m training my mind to anchor to what is steady and forever. It’s ongoing daily work — practicing permanence in a world that only guarantees impermanence.

I was nervous when I signed up for a workout class that I used to do in my twenties. I’d been feeling the nudge to get strong, to push healthy oxygenated blood through my system for a house clean. To feel those endorphins combat the restrictions in my body, to be told what to do by a guy that inspires me.

Coach tells me not to ask questions and just do what he says. That is exactly what I need: just show up, do the work, and get on with it. I survived the first week of a strenuous, sweaty workout, which confirmed for me that so much of how I feel depends on the limits I place on myself. Sure, I have to modify here and there, but my body followed the state of my mind that chose not to let anything get in the way.

My monthly treatment in the chemo lounge was right after class on Friday. My veins were so pumped that, for the first time, the nurse couldn’t get an IV into me. It gave me a funny sense of satisfaction—even though it hurt to have her poke and prod until I finally relaxed and let her in.

It’s helping my mindset to know that the cocktail of two drugs for my targeted therapies does not damage my healthy cells. Instead of attacking fast-dividing cells like chemo, they target and block the receptors that fuel the cancer cells. The hope is that, without fuel to grow, those unruly cells will weaken. With me strengthening my own immune defense through everything I’m doing—mostly mindset, herbs, supplements, and exercise—they may eventually remember their true function and return to behaving like healthy cells.

My life can easily be defined by tests and the shifting statuses of this disease. What I’ve learned from the latest PET scan is that I’m still reaching for the finish line — and I don’t want to be in a race. My path is the one I’m on, and anticipating it to be any different will only cause me grief.

Tests come in three-month increments. Thankfully, the next one is an MRI, which I requested because I need a break from the radiation of these nuclear medicine machines. Rather than reaching for a different kind of life or pinning my hopes on a better scan result each time, I’m practicing being here now — finding perfection even in the nooks and crannies. To be an expression of the good stuff I want to share — and for the rest, I place the future in the hands of God.

LESSON 194 ACIM: I PLACE THE FUTURE IN THE HANDS OF GOD.

UNFORESEEN VISITOR

by Maasaisis

Lately, I’ve had several graphic dreams of giving birth. I wake up wondering what they’re trying to tell me. Maybe it’s about birthing something new—a sign of the life that’s been extended to me—or perhaps it’s my body speaking, mourning the loss of the monthly cycles that abruptly stopped over a year ago when I began hormone therapy. A rhythm that often synced with the full moon and had accompanied me since I was twelve.

I didn’t have the capacity at the time to make sacred the closing of my fertility. I skipped the slow transition and dropped straight into the volatile swings of menopause within a month of starting treatment. Not that I was planning on having another child at this stage of life, but it still felt too soon, too sudden, and too permanent. With my life on the line, it was a sacrifice I didn’t give much credit to—just something I let go of without a proper goodbye.

Life in survival mode barely registered the radical shift from mother to crone. I felt myself aging from the inside—losing weight rapidly, aching joints, thinning hair, a fading sex drive, and dry skin. I couldn’t tell whether it was my body under siege by cancer or the absence of the hormones that had kept me feeling bouncy and womanly. All of it took a back seat to the tremendous effort it took just to keep my mind from cracking under the relentless pain of my lump unraveling over those months.

With my monthly cycle dormant, the familiar waxing and waning of my internal rhythm has shifted into a new tide—one of unpredictable waves, where heat rises without warning and chills follow like a shadow.

My husband and I decided months ago that whatever sleep we could get in separate beds was far more valuable than insisting on sleeping together. At first, it was hard—after twenty-four years of sharing our bed and sleeping within arm’s reach. But now he can snore away without worrying about keeping me awake, and I can thrash around, kicking the blankets on and off, fiddling with the wireless fan all night long. It works for both of us—and yes, date nights still happen, even if I have to talk myself into it. I wasn’t about to let that spark die, even as my body smouldered quietly in the background—my sense of identity rebelling against the slow withdrawal of my sexual desire.

I stopped hormone therapy when my cancer shifted from HER2-negative and hormonally driven to HER2-positive and protein-driven—a mutation I believe was triggered by starving the cancer of its hormonal fuel. At forty-eight, it was unlikely I’d regain fertility, even seven months after stopping the hormone blockers. For someone who once relished deep, uninterrupted sleep and napped regularly, the hormonal upheaval and circadian disruption stole what had been my superpower: sleeping through just about anything. I even became an early riser—for the first time in my life.

Recently, I’ve turned a corner—sleeping better, feeling less discomfort, and no longer riding the thermal rollercoaster. I convinced myself that the initial storm of menopause had run its course, that I’d paid my dues and finally got the hang of being a crone. I even packed on some weight that, just a few months ago, felt impossible no matter how much I ate. I took it as evidence of my body returning to homeostasis—a healthier new normal.

Another vivid dream of blood between my legs—and today I finally understood: these dreams were heralds of a reckoning with what was lost. At first, I was baffled. Then I burst out laughing, holding the evidence on toilet paper, and announced to my family, ‘No way—I got my period!’ Suddenly it all made sense: the weight gain, the return of vitality, the longer nights of deep sleep, my tender breasts. My womb has resurrected to it’s normal function—and it’s shedding what’s left of my eggs! I’m giddy, even as the familiar cramping and bloating return—sensations I haven’t felt in so long. My body is staging its own comeback, offering me a gentler, more natural transition into cronehood—a redo of what was taken too soon.

I’m amazed by the intelligence of the body—how it can pick up where it left off, even after everything in between. I carry a map of scars, proof of my undoing and remaking. To reclaim what was lost feels like a quiet miracle. This return reaches far beyond a biological comeback—It’s a homecoming to myself, and a reminder that what was once lost can be found again.

LESSON: WHAT WAS LOST MAY RETURN IN ITS OWN MYSTERIOUS TIMING.






MIRACLE SHIFT

by Maasaisis

“Your CT scan shows that you’ve responded exceptionally well to treatment,” my oncologist said excitedly over the phone. “There doesn’t appear to be any tumours in either breast although, It’s hard to assess the right one due to extensive scar tissue from the ulceration. What spread into your chest wall has receded, the thickening in your upper sternum is stable, and your lymph nodes look clear.”

I was surprised by how calmly I received the wonderful news—perhaps because it simply confirmed the profound shift I’ve been feeling lately.

Three months ago, my CT scan showed disease progression from my right breast into my chest wall, in the sternum, and in my lymph nodes. The tumor in my left breast was also evident. Due to my chronic infections, I was able to forgo the chemotherapy portion, which would have depleted my immune response, and instead gave my body the chance to fight back against the infections. With stage four metastatic breast cancer, the recommended treatment was aggressive. My unique situation gave me the chance to stumble upon a miracle.

After two targeted immunotherapy treatments with minimal side effects, all four of my tumor markers dropped below the normal range for the first time in five and a half years. I requested a CT scan after my third treatment, knowing I’d likely be recommended to add chemotherapy for the following round since my infections had cleared. I needed to know if my insides reflected how I was feeling—and they did! My doctors believe that the targeted immunotherapy was solely responsible for this miraculous turn of events. I have my own belief, which I attribute to a higher order I’d placed my bet on.

“I still advise you to do chemo and take advantage of this window to clear out whatever may be left of the cancer,” my oncologist continued. I’m incredibly grateful to have been matched with an oncologist who respects my decision-making process. For now, I declined the chemo, as my body is relishing the vitality that had been absent for so long. The thought of compromising my entire system, just as it was moving towards homeostasis, felt more like a risk than a benefit. However, I’m careful not to cling, as I need to remain open to pivot when necessary.

The only “barometer” I’ve put my faith in is the level of peace I feel in the choices I make. I’m talking about the kind of peace that can’t be manufactured for safety’s sake—the kind that is all-encompassing, a ‘yes!’ that I can fall into and feel held by. That’s what I felt after I declined chemo for my next round.

I’m learning that the only power worth giving is the Power I lovingly surrender to. Time and time again, I’ve been shown that when I do this, I’m being taken care of. I know when I’m not doing this because I feel a tightening around the reality I want to control. So, when I notice, I let go again and again, praying to be shown the way. The way has at times been scary, painful, confusing, and messy- it’s only from this vantage point that I can see the meaning in all of those experiences. This is what I need to trust as I keep following the way. This is what Da calls a miracle shift.

I hadn’t disclosed to my doctors the other ‘therapies’ I believe contributed to my ‘exceptional response.’ A fringe protocol, showing great promise as a cancer cure, came onto my radar last year. I began it as a last-ditch effort to make a difference on my own before seeking help from the conventional system. However, I didn’t use it long enough to give it a fair trial. The use of repurposed drugs—existing drugs originally developed for one condition but used to treat another—was gaining momentum and showing great promise for healing even the most aggressive and untreatable cancers.

The research I’ve done has given me enough confidence to test these therapies on myself, especially since, based on what I’ve gathered, they won’t interfere with the efficacy of my treatment and are relatively harmless. I’ve also been taking Artemisinin, derived from the sweet wormwood plant, often referred to as ‘herbal chemo’ due to its potent anticancer properties. Alongside this, I’ve maintained a steady regimen of herbal tinctures, teas, vitamins, high doses of anti-inflammatory supplements, and antioxidants to neutralize free radicals.

I also take time for my daily ritual of forest bathing and prioritize having meaningful, heartful connections. I can feel the power of the prayers from those who pray for me. I’m sure all of these have contributed significantly to my current state, but what I give the most credit to has nothing to do with what I put into my body.

My day begins with aligning my will with the greater will of God. It is only from this place that I can live fully and flourish, even with this disease. I need to recalibrate throughout the day because it’s so easy to get lost in our mortal predicament. So, I keep coming back, and I keep placing my faith in what I can never fully understand but can trust. I trust because I keep finding my way.

LESSON: PEACE IS THE CONDITION OF ALL MIRACLES- ACIM

Banner painting “Of The Same” by Maasa. In the spirit of our Sameness, we celebrate what can’t be threatened or taken away. What we thought we forgot is redeemed in the remembrance that was never lost. More of my art mine may be seen @ http://www.maasa.ca

DON’T ASSUME ANYTHING

by Maasaisis

As I sauntered into the frigid water amidst the flurry of screams, splashes, and gooseflesh, I was reminded of the simple yet profound lesson: don’t assume anything. The annual polar bear dip in the lake has become the only real symbolic tradition our family shares.

It began during the debaucherous phase of my husband and my early courtship over two decades ago. Still thoroughly inebriated from the epic party of New Year’s Eve, we impulsively jumped into the bone-chilling glacial waters of Kootenay Lake, desperate for a cure from our horrible hangovers.

Unbeknownst to us at the time, this impulsive act would evolve into something far more meaningful. What started as a way to rid the debris of toxicity transformed into a symbolic ritual—clearing the slate for a fresh start each new year. I had so much to release from the most challenging year of my life.

Leading up to the grand event, I was still pleading for respite from the debilitating pain induced by my chronically infected wound. It was outrageous to even consider jumping into a lake already laden with bacteria, made worse by a slew of people transforming it into a cesspit of infection-loving agents. Not to mention, I was on standby for a palliative mastectomy, which wasn’t for a curative cause but rather a necessary step, with its own unknowns, in order to proceed to the next phase of treatment that would hopefully nuke the cancer.

I had reached—or so I thought—a stalemate with my eight-month ordeal of enduring the gruesome ulceration of my tumour. Only in hindsight can I see the blessings hidden within periods of doubt, suffering and fear. I wouldn’t have been eligible for surgery if not for the recurring infections. I wouldn’t have started the new treatment had my cancer not mutated into a different kind. I was ready to let go, my hands open.

But my hands gripped, white knuckled in the darkness. At night, my trust waned, smashing against fears and contradictions of my own making. My heart raced with the terror of losing parts of myself. What security was there in what I was willing to give? My mind fought, freaked, and froze around runaway thoughts that I could not control. Would I regain mobility in my already compromised arm? Would I be left with a Frankenstein version of my current wound, along with a donor site that might not heal properly? Would my cancer run rampant? Death lurked close by, and faith was but a whisper in my shallow breath.

With a new day and along with the light, I pray to strengthen my trust in letting go. The more I release the need to control and arrange the world around me to feel safe, the freer I become to recognize the path unfolding for me. I’m learning to trust this way because I feel at peace with the next step—only as it unfolds. When I analyze and weigh my options, mingling them with combative emotions, all that happens is that I go around in vicious circles. Decision making brings only anxiety and uncertainty. I cannot be trusted operating from this place.

In my right-mindedness, I see how my perceived safety net is hooked onto anchors that aren’t secured deeply. My constant attempts to rearrange and stay on top of what I’m trying to control only make the net tremble, precariously holding everything together.

This is why A Course in Miracles teaches me to let go of what I think I know and offer my free will for guidance—to see beyond the mind I have constructed and trust in what I don’t yet have the capacity to understand. It’s a big ask, one I often meet with resistance: to take responsibility for all that I don’t want to feel, while finding empowerment in giving up what I’ve given power to.

The help I’ve received has come in ways I could never have planned or imagined for myself. My nemesis, the staph infections that prevented me from getting chemo, instead allowed me to receive the gentler targeted therapy portion of the IV cocktail.

I never would have imagined that one treatment of the targeted therapy would reroute me into the lake. By the time the surgeon called me back just after Christmas, my wound had transformed from an angry, oozing mess into something that actually looked like it was healing. Before I could share this update, he gravely explained that I would need invasive surgery to remove my breast, cut into my pectoral muscle, and go deeper into the chest wall. This would be followed by extensive reconstructive surgery requiring specialists. I’d have to carve out parts of myself to remake what had been taken away—all with the looming risk of poor healing or the cancer compromising me further.

He was surprised and excited when I told him that my wound looked better than it ever had—that it actually seemed to be closing with healthy tissue. For the first time in over a year, I no longer needed morphine to manage my pain! He agreed that the best path forward was to get on with treatment as soon as possible.

My path continues to twist and turn in surprising ways, reminding me that a higher working order is in play when I choose to trust. The onslaught of antibiotics for my infection had concerning repercussions on my gut. When another three weeks passed, I received the same unorthodox treatment without the harsh chemotherapy. Truth be told, I’m still terribly afraid of chemo. Even though the infection and gut issues looked horrible from the outside, on the inside, I felt as though I was being gently guided to not be afraid.

The genetic testing result I’d been waiting for over two months might be ready before the next round of treatment. Knowing I have a good match would give me the courage to shift my perspective and fully accept chemo as medicine, not poison. I’m placing my trust in divine timing and also leaving room to have no set plan in place.

My practice is to remember to stay open, even when I feel the urge to close tightly around all that is precious to me in an attempt to protect it. There is a paradox in handing it all over, where freedom intertwines with the terror of letting go, until the moment both hands open. I keep coming up for air on a regular basis. I forget, and then, by the grace of God, I remember that life cannot be truly lived while fearing the loss of what we love. A Course In Miracles teaches that Love is the absence of fear.

I’d triple-secured waterproofing over what was left of the open wound—an upside-down heart-shaped opening where my breast used to curve. Below it, a bridge of healthy tissue between another meaty section that’s shaped like a semicolon. The deep, long and narrow bottom of the crevice, prone to infection- hidden for months, had finally widened and risen to the surface to dry out. I couldn’t even remember the last time I’d fully submerged in water.

Albeit the middle of a Canadian winter, the beach was devoid of snow. While the weather was milder than in other years, I still hopped between my bare feet, stripped down to my bathing suit. A sizable crowd had gathered, many of whom I recognized as seasoned veterans, shrieking with excitement. Da danced around in his bathing knickers, my husband hollered, Mama was, as always, ready to document with camera in hand, and my teenage daughter grimaced against the cold. Together, we prepared for the plunge, my family by my side.

This was it—we all needed to press the reset button, and this time, I would do it with focused intention. For the first time, I didn’t rush in and out. I took in every step of the way into whatever comes next, and found my way back to shore.

LESSON: WHAT I THINK I KNOW DOESN’T PROVIDE THE KIND OF SECURITY THAT I SEEK.

WAILING THERAPY

by Maasaisis

I’ve been waiting for my husband and daughter to leave for the day. The house is still, amplifying the sound of my pacing feet. I feel as though I’m going mad, squeezed by a vise grip made of my own flesh. My shallow breath crashes against the tight wall of my chest with nowhere to go. Anxious and writhing in pain, I feel that something is going to snap. I don’t feel right inhabiting this tight and torqued body. The urgency of something needing to happen overwhelms me. I don’t know what—until I open my mouth.

At first, I’m stunned by the sound. It comes from the deepest, darkest cavern of my being. Every ounce of my energy is behind it, driving it out from a place that has been dormant. Once the channel to the exit is open, it moves with force. The ceaseless sound of anguish reverberates against the vaulted ceilings as waves of crying, wailing, howling, and screaming crash against the walls around me. It’s a cathartic symphony, raw and primal.

Somehow, my fur kids, Apollo and Tuzzo, instinctively keep their distance, as if sensing this for what it is—an animal release. The vocal purging eventually stops, followed by a silence broken only by my panting breath. From this untamed ceremony, I’ve discovered newfound space within the constriction of my body—a respite from something other than the focus on my suffering. A gift from chaos.

This is yet another edge I have to find my way around, through or over. No matter what it looks like on the outside, energy needs to move.

I’ve been sounding out what I’m up against—my wailing therapy is not just about release; it’s a reaching toward life. I must keep moving toward life, even as the intensity of these last few weeks tries to pull me away. Even through hardship, I’m visited by angels always close by.

They have been showing up through people and moments that remind me I’m still here—precious and deeply loved. People are pouring their prayers over me, bringing me beautiful meals, offering meaningful gifts, sending fortifying messages, giving me deep heart-to-heart touch and soulful conversations. I hold fast to the life and love that make this wild ride bearable.

My heart has cracked open through adversity, creating space for love to funnel through. It tends to the sharp edges, where tears of agony alchemize into beams of light. My heart is wildly awake, with an incredible capacity to feel it all—the mix bag of everything—and still keep pumping for life.

I’ve never felt closer to my family and friends. I prioritize to be free of grievances and the trivial things that used to bother me. I no longer feel intimidated by beautiful, powerful women—I want to draw them in and shine their beauty back to them. I’m drawn to elders to hold me in their wisdom. I give myself permission to present myself as I am. I don’t avoid talking to people I don’t know. I cherish taking time to do just about anything, giving value to what I can do, and doing my best to let go of what I can’t. I’m learning to forgive…mostly myself. I’m not afraid to express that I’m scared and to claim that I don’t know anything, which fortifies my faith in God.

I’ve changed my mind about many things, allowing me to bend with what’s happening. These are profound gifts bestowed upon me during the most challenging of times.

This post has come together in fits and starts, mirroring the rhythm of my days lately. My daughter and husband shaved off my hair as I declared my readiness for chemo, only to find out the day before that I had another bout of a nasty staph/strep infection that postponed it. It turned out my body had become resistant to the last round of antibiotics. The persistence of this infection is what needs to be addressed before the nuking of cancer cells. This deep-seated inflammation surely contributed to the maddening pain.

This chronically festering open wound poses a challenge for chemo, as the treatment will wipe out my immune system, leaving me dangerously vulnerable to the effects of this recurrent infection. I had to laugh at the irony of my premature hair shave in the middle of winter. Still, I’ll offer it up as a symbol of my readiness—a gesture of my willingness to do whatever it takes. I was able to proceed with the immunotherapy portion of my treatment, and a meeting with a surgeon was quickly arranged to discuss the possibility of debridement or a “palliative mastectomy.”

The word “palliative” has come up a couple of times now. I’ve deflected it, swatting it away like a bee that wants to sting me. This word has the power to make me retract from life if I let it. So, I am choosing to see it as I would the word “may”—a word that leaves room for possibilities, for this or that, and everything in between.

Now, as we approach the time of the birth of Christ, I search for the light of Christ within—the light we all carry, the light that connects us to each other and to this crazy, beautiful life. What else can I do but seek and follow this light? What else can I do but keep reaching for love and life? Though I may not know where I’m going, I keep finding jewels in the most unlikely places. That tells me I’m on the right path. That tells me to just keep going.

I close this year celebrating what I’ve gained through what I’ve endured and what I’ve let go of. I’m doing what I can and accepting a whole lot of unknowns. I’m learning, making mistakes, getting real messy, while striving to keep my heart open. I don’t want to leave anything important unsaid. I hold ambition and inspiration in keeping my dreams alive.

I move toward a new year by placing one foot in front of the other, step by step and breath by breath. I send my deepest gratitude for all the love and support I’ve been given. I believe in the power of love as the most potent medicine to do this dance of life. We’re all dancin’ in our unique ways, but we’re doin’ it together. And when the music shifts, breaks, and stops as it naturally does, may we remember to keep dancing—however we may, even if it is only on the inside.

LESSON: KEEP DANCING

THE FALLEN NIPPLE

by Maasaisis

I’m examining a part of myself that has been with me all my life, now detached and between the tips of my tweezers. It’s surreal that this blackened, shrivelled raisin of a thing once served as my daughter’s comfort and source of nourishment, nurturing her growth for over two years.

“Should we say something?” my husband asks. My stomach churns in a strange brew of fascination, disbelief, and horror. My nipple has fallen off and it is no longer a part of me.

There have been so many levels of letting go. A year ago, I was finally ready for a mastectomy only to learn I wasn’t eligible. For the last six months, my body has been breaking down this fist-sized ball of unruly cells in a painful, gruesome process—my body’s own way of giving me a mastectomy.

The fleshy crevice is nearly closed, and the sheer force of tissue pulling together brings the most intense pain, surpassing even the avulsion fracture in my left humerus from my recent fall. After my third staph infection due to this open wound and low immunity, I’ve accepted antibiotics as part of my treatment plan. Once my foe, antibiotics are now my ally—a testament to the softening of my once-rigid way of thinking.

The right side of my torso and arm feels like it’s rusting—heavy, creaky, and persistently achy. It’s a diversion from the new lump growing in my other breast. This unwelcome newcomer has a genetic twist, playing by a different set of rules from the other side. I’m not sure if experience has lessened the shock of another cancer or if I’ve simply become immune to adversity. Either way, there’s nowhere to go but toward acceptance, mustering the fortitude to keep going.

“Thank you for being a part of me. Go in peace,” I say. I package up my nipple to be buried with our son, whom I miscarried years ago. What I’m sharing may seem like tragedy and hardship, but I’m seeing it differently. I’m recognizing how much I’ve let go of, which has helped me grow in ways I may not have otherwise. I’m finding confirmation of this in how I navigate these experiences.

There are only two ways of being. In this cocoon of metamorphosis, I can be trapped in darkness or held in light, depending on how I perceive my experience. I’ve started simplifying my approach to life: whatever is not of peace must be examined, and it’s my work to practice finding my way back to peace if it’s absent.

Some days, I crumble under the weight of it all. In the catharsis of unyielding pain and exhaustion, I cry out for mercy. There are thoughts I dare not voice—because if I say them aloud, they might become real. My mind swings like a pendulum between what I have gained and what I have lost. Tonight, I mourned the loss of what was once my perky pink nipple. Tomorrow, I hope to gain something that will illuminate my way forward.

I’m managing my pain while readying myself for the next stage of treatment. There are many moving parts, and they can only be organized from an eagle-eye perspective. Looking back over the last five years, I see that my milestones of growth have come through loosening my grip on what I think I know, acceptance, and my willingness to see things differently—to choose a perspective that doesn’t trap me with nowhere to go.

Now I’m waiting to have my sternum biopsied. We need to determine if the metastasis there is related to the hormone-driven cancer or the new one. If it’s connected to the original cancer and the other is contained without spread, surgery may be recommended. If there is spread, I’ll need to consider systemic treatment for both. The thought of surgery no longer terrifies me. My attachment to appearance no longer enslaves me. Accepting help no longer feels like defeat.

I’ve decided to be proactive and use the remaining funds that this incredible community raised for me towards genetic testing. If I’m to have faith in conventional treatment, knowing that guesswork is minimized would be helpful. FoundationOne, an FDA-approved lab, uses biopsied tissue to identify mutations, amplifications, and other alterations to match targeted treatments. Though it’s unfortunately not covered by our healthcare system and comes at a high cost, this step feels essential for my peace of mind and the best way forward.

I didn’t want to fight to get my oncologist’s sign-off on this or to help me apply for the grant. Her support is essential in moving forward and incorporating this information into my treatment plan. After a four-hour drive and praying for a smooth meeting, I was met with warmth and her full support.

I’m not the same person who once held strong judgments and rigid beliefs. Reflecting on who I was, I see how much I’ve softened the boundaries of what I thought I knew. On a good day, I as Spirit feel more real than I as body. In surrendering my attachments—to appearances, outcomes, and certainty—I’ve discovered that guidance often arrive in the most unexpected and affirming ways. I yearn for connection, to bridge the gap of differences, and to find refuge in the love that unites us all. In this way, I feel closer to God and all of creation, and in this connection, I find my peace.

LESSON: I AM WILLING TO SEE THIS DIFFERENTLY- I CHOOSE PEACE INSTEAD.

-Teaching from ACIM

CHAOS TO LOVE

by Maasaisis

The process of biological changes manifests as loud, outer expressions, screaming for attention. It’s so easy to be swept away by these acute sensations and fall victim to them. When my focus latches on, it’s like a ravaged dog clamping onto a bone, unwilling to let go. Escaping the madness of what all this could mean requires a quantum shift in awareness.

Now, both breasts are mutating. For months, I’ve been witness to the gruesome disintegration of a mass that, depending on my mindset, can look like healing or like cells spiralling completely out of control. My awareness has evolved, revealing just how easily I can be whisked into victimhood and pulled into dark, unsettling territory. This new lump on my other breast is a different cancer—its subtle emergence allowed it to slip under the radar of my current treatment. It is not hormonally driven which means I’ll have to consider an alternate plan.

The use of my right arm now has limitations due to the swelling of trapped lymphatic fluid under my armpit. This breast has shrunk to half its size as the tumour corrodes. My right wing feels taut, wrapped tightly, like it’s encased in saran wrap. I’m quite certain there’s tearing in my tissue from all the stretching thats causing the edema. The open crevice reveals a dark abyss where there is a battle taking place. The other day, I pulled out a piece of rotted flesh the size of a loonie, and the sight of it made me woozy. Is this process of tissue dying off a form of healing, or am I slowly breaking down?

Yesterday, nearing the end of a peaceful forest walk, a distressed call from my daughter coincided with my dog getting into a vicious dogfight, instantly changing my state. Whirling around, I stepped onto a slippery rock, sending my phone and legs flying into the air. I broke my fall with my good arm and went into immediate shock. It felt as if the opening on my breast ripped wide open, while pain shot through my shoulder and wrist on the other side. The tranquil forest suddenly became a stage for my screams, echoing alongside the brutal sounds of the dogs fighting—a symphony of chaos amidst the silent trees that my daughter heard on the phone lying nearby.

The thing with chaos is that it can feel like the entirety of time, pulling us into its trap. The dogs stopped when my boy, Apollo, sensed I was in trouble. Somehow, he knew I was more important than the fight and came right to my side, whimpering and crying with concern. I lay there, terrified of the damage beneath my bandage, now with both arms compromised. All I could think was, ‘Are you fucking serious? More pain?’ My mind quickly spiralled into blame—the wrong shoes, the dog fight, the phone call—but I caught myself and changed my mind. That road will take me nowhere but down.

Becoming something of an avid traveler in my mindscape, I recognize the familiar downward spiral. Each descent reveals traps and my entire existence hinges on if I can step over the traps and respond to life in an affirmative way. Can I find peace amid so many frightening, moving pieces? No, not always and not right away. What I’ve noticed is that when I strip everything down to this very moment, I’m okay. Nothing is imminently ending. If I separate myself from the pain as an external experience, I can find pockets of respite simply by being here.

As I type, each press of a key reminds me of what’s wrong with me, but I counter it with, ‘Well, at least I’m writing, at least no bones are broken, my boob is still in one piece, I’m eating, and above all, I am so deeply loved by so many.’ What’s truly scary is not knowing what will happen. Grounding myself in what I do know is the only solid counteraction I can hold onto. As long as I anchor myself in love without clinging to it as something I might lose one day, I have the magic antidote to get me through the toughest of days.

I have been stripped down in a way that has allowed me to love myself by truly accepting love from others. Suffering is the sickness of feeling utterly alone. I’ve finally allowed love in. I feel the sparkle of all my relationships shining bright like a lantern, guiding my way forward. In this torn-up world of differences, love is the only medicine. It’s the glue that binds us to life, enduring through whatever is thrown at us and staying with us always.

WOUNDED HEALING

by Maasaisis

I can now stick the tip of my pinky finger into the black crater of my putrefying tumour and watch my nail disappear. My curiosity meets my repulsion as I wiggle my finger around, discovering new caverns of hollow spaces. I remind myself that although the foul-smelling decomposition of my flesh brings me to the brink of losing whatever foothold I have, I’ve been primed and ready for this by what I’ve learned through German New Medicine. Belief is also a choice, and right now I’m anchoring myself to whatever keeps me steady in the wild terrain of my mind.

I’m cautious about certainty, but my intuition tells me that I’m witnessing evidence of cancer cells dying off and my tumour shrinking. This gruesome biological process seems to be nature’s way of degrading what is unhealthy and unwanted. I can feel the tight ball of unruly cells retreating into itself, pulling on the network of connective tissue and causing inflammation that blocks lymphatic pathways. The tension is felt from the ribs below my breast, up my inner arm, and wrapping around to my lats. The squeezing of nerves sends sharp echoes into my bones.

I recognize that the details I’m sharing may be offensive or interpreted as a cry for help. Perhaps it is. I write as a way to release the pressure building in my mind and to alchemize dark thoughts into clarity. Space is crucial for me to orbit. My intention to be transparent and honest is to invite what wants to be revealed, giving me the opportunity to heal both my mind and body. Whether driven by my ego, a need to document my journey, or as a necessary form of therapy to keep going, I also hope it may serve others in some way, as I utilize creativity as my rose compass on my healing journey.

I’m still learning to balance what fuels my spirit with the patience and care my body needs. I’m getting better at gauging whether I’m overextending myself or being too cautious and limiting my experiences. There’s always room to pivot and respond if I allow myself the space to change my mind. If I impose too many boundaries on how I think I should be or what I can and can’t do, it creates a cage that leads to self-induced suffering.

I knew that a full weekend of vending my visionary crafts, dancing flamenco, and consciously connecting with those who attended the opening of my art exhibit would test my capacity for output. Needless to say, it was a testament to how love and the joy of heartfelt connection are precious medicines for my soul.

Bare-breasted, I sit as the wound clinic nurse cleans my oozing opening. I feel deeply irritated when she asks why I haven’t had the tumor removed. I haven’t seen this nurse before; her curt foreign accent makes her sound harsh and too direct for my sensitive state after a big weekend. The sleepless nights, punctuated by sharp pain and the emotional toll of the drugs I took to manage it, along with a general feeling of being ‘over it,’ contributed to my irritation. Instead of lashing out or retreating into myself, which is what I wanted to do, I course-corrected and calmly stated that surgery is not an option for me while treating metastasis. That response seemed to soften her; perhaps the softness was already there, but I only noticed it after my intentional remark.

I can easily fall into the trap of associating what’s happening to my body as my only experience of self, especially as my keen sense of smell constantly reminds me of a part of me that is rotting away. It’s easy to feel self-conscious about the smell, but that’s the beauty of transparency: there’s no need to hide. The practice is in finding safety in the wide open.

My mind is most vulnerable when day slips into night and pain lures me into the territory of fear and uncertainty. Until recently, I relied on my superpower of being able to sleep and shut off adversity. Now, that power has been hijacked, bringing new nighttime anxieties about losing the natural ability to rest and reset.

I’ve made peace with the tiny teal-colored pellet of morphine that I’ve accepted as my ally for now. I’m having a harder time with the little aqua-colored ones that can easily send me off to sleep. There is a price to pay for this assured reset, as it amps up my already medically induced volatile hormones. It makes me question and quake.

I’m into the seventh month of treatment, and although there are days where I feel like I still don’t have a handle on anything, I’m getting better at being kind to myself. I am more patient than I used to be and have faith in what can’t be fully known but deeply felt as truth. I seek opportunities where I can open to love instead of repelling, shrinking or hiding. I do my best to remember that that pain happens, but fear and suffering is a choice. I ask for help to surrender what is in the way of trusting what can’t be threatened.

While on a walk, I saw a round of a cut-up fallen tree. Looking closer, I was amazed to see bright green foliage sprouting from what I would have otherwise thought was dead. It led me to reflect on how the will to exist and express can blossom from the most unlikely places. The force of creation is a power to behold, sustained by the remembrance of its indestructible nature.

LESSON: “Nothing real can be threatened. Nothing unreal exists.”- A Course In Miracles

Joy captured by photographer Clinton Johnson.

LIBERATING THE GIRL IN THE ORANGE TUTU.

by Maasaisis

I’ve taken my place on stage, and all I can see are the silhouettes of what look like hundreds of people beneath the blaring lights shining directly on me. Our flamenco group, Las Llamadas Del Flamenco, has been practicing diligently for this very moment: to dance at the Starbelly Festival in a prime evening slot. Then, it happens again. My mind goes blank, and I feel myself distancing from my own body as panic sets in. I’m experiencing myself outside of myself, and I know that I will cause a train wreck if I don’t get out of my head. This disconnect is not new; I’ve felt it when the pressure of perfectionism rears its ugly head.

The first time this happened is one of my earliest memories. I was five, maybe six, enrolled in the prestigious Miyashita Ballet School in Kyoto, Japan. The school was known for its rigorous and comprehensive ballet training, even for young dancers. I remember the day of our big performance. Mama, along with all the other moms, was getting me ready backstage, slathering make up on my face and slicking my hair back into a tight bun on the top of my head. It was so tight that it pulled my eyes up, but no amount of pulling could hide the obvious Caucasian traits of my gangly limbs and my reddish, light brown hair. Amongst the thick, silky black hair and the build of other Japanese dancers, I was already blatantly out of place.

We all took our positions on stage, dressed in our orange tutus. I looked for my parents, but the lights blinded me. As the music started, I felt my heart in my throat, and suddenly, my mind went blank. I had no idea what I was doing up there, and my only reaction to the sudden displacement within myself was to move to the music. But my dance was entirely my own and bore no resemblance to what I had learned. I vaguely remember making the commitment to keep moving, flying solo on a gust of wind that only I could feel against the unified flock of orange tutus. I was completely in my own world throughout the entire performance, a fact that everyone witnessed. When others made it evident that I had made a colossal mistake, it forced me to carry the weight of a newfound burden of shame.

Fast forward forty-five or so years later, I’m back on stage, and I find myself on the outer perimeters of myself, desperately clinging to presence. The music starts to sound out of sync with my tapping feet, and I realize I’ve missed a cue. Drifting apart from the other dancers, who move seamlessly in sync, my mind teeters on the precipice of a total blank as I struggle to regain composure. Within the crisis, my body takes over and aligns with my group in the next bar. I have no idea how long I have been out. I willed myself to focus on my sisters on stage and to calibrate with them rather than with my competing mind that was trying to hijack the performance. It was a tug of war that I somehow managed to dance through, but not without leaving its ugly mark.

The idea of preparing for and attending a three-day festival, vending my art and performing late into the night, might have been a stretch. I had missed a flamenco performance a few months earlier because my body simply said ‘no’. After five months in treatment, a couple of visits to the ER, and dealing with a gnarly ulcerated tumour, I needed a win, so I did it. I showed up anyway with a wing and a prayer.

My shame over not performing as well as I knew I could, with a mistake I couldn’t forgive, cast a dark shadow from the moment I left the stage, despite the exuberant applause of the crowd. I was deaf to any compliment that followed. Consumed by the desire to hide, I couldn’t help but feel that I let my group down. Frustration set in as I realized I’d fallen victim to my ‘old program,’ perhaps starting back when I was the rogue dancer in my orange tutu. Exhausted and upset, I couldn’t let it go. My ego had robbed me of the joy I could have celebrated simply by being there and able to dance at all.

I awoke from a restless night of sleep, still sticky with the residue of regret over what could have been. In the light of day, I realized that an old program had surfaced because it was ready to be healed. That little girl in the orange tutu longed to be liberated, but I didn’t know how, as my ego still dominated my mind space. I’ve learned to ask for help through prayer when I’m stuck. I prayed to be liberated from attacking myself. I prayed to forgive the false perception of myself and to have a beautiful day filled with meaningful connections. I sincerely prayed to let it go.

As I walked toward my tent filled with my visionary creations, a woman stopped me along the way. Her eyes welled up as she told me that the solo I performed the night before moved her to tears. Feeling her sincerity and her need to express appreciation for my performance, my heart instantly opened to receive her perspective, releasing what was holding me. The miracle was that I actually believed her.

The day continued with numerous people expressing their love for our performance, highlighting how our group moved together while showcasing our individual gifts of creative expression. I was gobsmacked. Their perception was entirely different from how I perceived it; I was so focused on what I did wrong rather than celebrating dancing with my flamencas—a typical sabotage of the ego, which only attacks to seek importance.

The Holy Spirit showed me that healing isn’t done alone; it happens with the help of others who can shed light on who we really are beneath the distortions lurking in our subconscious. What blew my mind was seeing the footage of our dance performance. As I cringed, anticipating the part where my mistake occurred, I was shocked to find that it came and went in a flash. During that time, I was entirely in sync with the music, doing something different from the others but it looked intentional and seamlessly integrated into the whole dance. Perfectly imperfect, the girl in the orange tutu was finally liberated.

LESSON: THE EGO ALWAYS SEEKS IMPORTANCE AND WILL ATTACK AND SEPARATE FROM THE WHOLE IN ORDER TO DO SO.

BATHING RITUAL

by Maasaisis

I’m watching blood trickle out in a steady stream, flowing down the curved contour of my breast and marking my torso. The crimson liquid bridges the realm from inside to outside, flowing from the large, mutant opening of my lump that resembles a miniature exposed brain. I notice a slight rancid smell of decomposition which quickens my heart rate so I distract myself by watching the flow. I’m in awe of how it keeps moving, assisted by force and gravity, into the bathwater, tinging it a slightly amber colour.

When we built our home, a big bathtub seated in an open space was at the top of my wish list. I meticulously laid out every tile surrounding the tub with slate, and we crafted a step into the tub from an open-faced timber slab. Ammonite fossils adorned the tiles, connecting me to ancient times and adding a personal touch to my sanctuary.

My evenings involve soaking in water that’s a little hotter than initially comfortable. I love letting the heat sear away the residue of the day, watching my skin redden against the wet heat. Perhaps it’s a Japanese trait ingrained in me from a culture that appreciates bath time as a ritual for rejuvenation, relaxation and cleanliness.

In Japan, public bathing in bathhouses with an assortment of soaking pools of various temperatures and qualities is woven into the culture. It’s a communal activity that fosters connection through the appreciation of a therapeutic soak. Both Sento, public bathhouses found in most neighbourhoods, and Onsen, which are fed by natural hot springs and often feature beautiful outdoor soaking pools, involve etiquettes and rituals. These are based on respect and tradition.

Going to the sento with my family stirs memories of early childhood, a time before I became self-conscious. I would alternate between going into the ladies’ side with Mama and the other side with Da until I reached double digits in age. Upon entering the bathhouse, I was greeted by the familiar fusion of aromas—mineral-rich water, herbs, soaps, and beauty products. An invitation to wash away the day and relax with strangers, buck naked.

At the enterance, there was a small booth where the person on duty collected our fee, which was a few hundred yen at the time, equivalent to about three Canadian dollars. The person was seated in the center of the division as the sole onlooker on both sides. My mom joked that whoever applied for that job must like looking at naked bodies. Naked bodies were a source of curiosity and quiet amusement for me.

I had no qualms about stripping down to reveal the stronger traits of my Caucasian DNA. I was accustomed to being stared at, even when clothed, simply because I didn’t look purely Japanese. At that time, with my spindly long legs and flat chest, I felt no shame and considered myself Japanese through and through, having been born and raised in the Land of the Rising Sun.

On the men’s side, It was amusing to observe the assortment of uncircumcised appendages of various shapes and sizes, though I made a point not to stare. Da, with his pale moon-white upturned arse perched on his long carrot legs, Scottish red hair, and his mushroom-tipped ding dong, drew most of the attention before they noticed the half-breed of the opposite sex in tow.

We knew the public bathing etiquette well and did our preliminary wash using the deep basin of luke warm water at the entrance of the large tiled bathing zone. Moving on, we selected our bathing stall from the lineup, each equipped with a seat, mirror, small basin, showerhead, tap, shampoo, conditioner, and body soap. Before sitting down, we ensured to clean the low seat of the plastic stool thoroughly. We proceeded with our detailed scrub down before choosing our first pool to melt into.

There are warm baths, hot baths, even hotter baths, herbal medicinal baths, detox baths, chilly baths, electric baths, and even outdoor baths at most onsens. I used to dip my toes and maybe even submerge my whole foot in the electric bath before chickening out, remembering the old lady who had a heart attack believing she got electrocuted.

Bath time for me is a ritual carried on from my childhood. I was gutted when I was told I could no longer soak in the bath—unless I poured a half bath and sat upright so my breast would float safely above the water. I couldn’t risk another staph infection from bacteria lurking in still water. Begrudgingly, I took to showers because it was too much of a tease to get in the bath without being able to slink back into a full relaxation pose, submerged, with my outstretched legs and heels perched on the opposite end. But after an exhausting day, I opted to at least give half my body the release it needed and witness the extent of my bleed.

My ongoing practice is to create a perspective that supports a harmonious state of mind. I felt mixed emotions of wonder and alarm about the volume of blood coming out of me. My Da, a doctor of Japanese acupuncture told me that Shaketsu or bloodletting is a practice to release blood out of a blocked meridian. A medicinal treatment to maintain health so I decided that is what my body is doing all on its own.

I remind myself that living in Canada, with readily available healthcare, is truly a gift. When I’m ready to get out, I call out to my husband for help to avoid getting blood everywhere. On the vanity across from the bathtub sits a basket filled with saline for cleaning, packets of antiseptic wipes, gauze, skin prep pads, blood clotting gauze, antibacterial silver mesh, and plenty of high-quality bandages designed for serious wounds. These were all provided to me for free by the local wound clinic, along with instructions from a nurse on how to care for ‘my little exposed brain on my boob.’ I can get more of whatever I need for as long as I need it. Today, I choose to be patient, curious, thankful, and keep my sense of humour intact. Today, I choose to count my blessings.

LESSON: MAINTAIN THE ESSENCE OF SACRED RITUAL EVEN IF IT HAS TO BE MODIFIED.

In Kyoto, Mama pregnant with me, and Da in his geta (traditional Japanese wooden sandals) and Scottish beard, which he kept until we immigrated to Canada.