Tag: self-care

LIFE WITHOUT ANSWERS

by Maasaisis

I’ve been expecting the report from my most recent breast MRI to land in my inbox. I’m still in training—to receive these notes without letting them hijack my inner state. Reports that arrive like tarot cards, capable of projecting a future reality that contradicts the one I’m living.

My laptop rests on a tabletop made from massive slabs of hardwood, in a large tiled kitchen overlooking a garden of lush tropical plants that look as if they’re on steroids. We are halfway through our vacation in Mexico, escaping Nelson’s long winter in the laid-back village of Lo de Marcos. By now, we had acclimated to the unstructured rhythm where nothing happens in a hurry, and where the sun shines even on unwanted news.

I had requested a breast-specific MRI to give my body a break from medical imaging that uses radiation. I accepted that this meant traveling to a larger hospital in another town in order to have a look inside without that cost. There were two possible destinations, and one happened to be in the same city we would be flying out of for our trip to Mexico. The stars aligned. I booked the appointment for a Saturday—the day before we flew to Puerto Vallarta.

I decided to let it go. I wouldn’t give energy to anticipating the result until it was quite literally in my face, which is today. A deep meditation this morning left me with a quiet certainty: no matter what, I would continue on the path laid before me, guided by a way of interpreting my life that keeps me safe under all circumstances. I admit this is easier in the absence of pain or imminent danger, but experience has taught me it’s the only way forward without letting this disease take me hostage. I dropped my shoulders on the out-breath, repeated my A Course in Miracles lesson for the day, and clicked open the report.

The MRI confirmed what I already knew. It felt far-fetched to imagine a different outcome when I can still feel multiple lumps in my breast, embedded in scar tissue left behind by ulceration. Like barnacles clinging to the memory of my wound, they remind me of what I’ve been through—and that I’m still in it—even as my life continues to shine beyond it.

Any wish to one day receive the words cancer-free is no longer the destination of my path. Instead, I anchor myself to what fuels my soul and continue choosing the path that leads me toward peace now. Wishing does not belong in the present.

It makes sense to me that what was once a large mass, as my body broke it down, may have left small remnants scattered through the surrounding tissue. The scan also showed nearby lymph nodes in the right armpit that are likely involved. The left breast and its surrounding lymph nodes, which were affected not long ago, remain clear. I’m grateful there are no new frightening surprises, and that what miraculously disappeared on the left after the wound on the right closed has remained that way.

Given my history, the radiologist can only assume these scattered lesions are active cancer. Once labeled metastatic, that designation tends to stick, shaping future assumptions and forming the basis of treatment decisions. The only way to know for certain whether these current lumps are cancerous would be through biopsy. Because my cancer has mutated before, it’s possible I’m dealing with another variation. The familiar questions arise: Is my current treatment still effective? Do I undergo another biopsy? Would surgery even be an option? Would I have to consider a more aggressive treatment plan?

The analytical mind tries to navigate its way out of this maze, searching for certainty. But what I’m really seeking is higher ground—a vantage point that allows a wider view.

I haven’t thrown the baby out with the bathwater, per se. Years of learning about the disease process through German New Medicine, and experiencing its stages in my body in real time, have offered me an alternate way of understanding what my body might be doing. I hold this perspective as a lens—one that helps broaden my view and keeps fear from narrowing it.

In GNM, there isn’t a distinction between hormonal cancers and others, but rather an interpretation of how specific biological programs unfold through phases of conflict and repair. Much of what I came to understand was shaped through lived experience, recognizing patterns as they appeared in my own body. I only have my experience to reference. There is no right or wrong way—only the way I am no longer trying to dominate, especially since studying A Course in Miracles.

Because of that, I remind myself that decision-making has to come from a place not ruled by fear. I try to create enough space for difficult choices to settle, rather than forcing them into shape. That means listening beyond my conditioned thinking and first examining where the real conflict lies—always beginning in the mind.

What I’ve found is that when the way forward becomes clear, even if it isn’t what I wanted or expected, a sense of peace follows. There’s no pushing, nor being pushed. Instead, a quiet certainty settles in. I no longer hold many absolutes, except for the one thing that keeps me free in any situation—and that does not depend on my body.

I do not sense imminent danger. Quite the opposite. I feel vitally alive—nourished by sunshine, purified by the ocean, held by the abundance of love that surrounds me. What is yet to come has not arrived, and so I stay here, present, basking in the now. As the year closes, I recognize the same truth that has carried me along the river of life: let go, let God, and remember that nothing real can be threatened, and only love endures.

LESSON: MY SAFETY LIES BEYOND MY BODY.

Above painting “Alchemy” by maasa.ca

MIRACLE SHIFT

by Maasaisis

“Your CT scan shows that you’ve responded exceptionally well to treatment,” my oncologist said excitedly over the phone. “There doesn’t appear to be any tumours in either breast although, It’s hard to assess the right one due to extensive scar tissue from the ulceration. What spread into your chest wall has receded, the thickening in your upper sternum is stable, and your lymph nodes look clear.”

I was surprised by how calmly I received the wonderful news—perhaps because it simply confirmed the profound shift I’ve been feeling lately.

Three months ago, my CT scan showed disease progression from my right breast into my chest wall, in the sternum, and in my lymph nodes. The tumor in my left breast was also evident. Due to my chronic infections, I was able to forgo the chemotherapy portion, which would have depleted my immune response, and instead gave my body the chance to fight back against the infections. With stage four metastatic breast cancer, the recommended treatment was aggressive. My unique situation gave me the chance to stumble upon a miracle.

After two targeted immunotherapy treatments with minimal side effects, all four of my tumor markers dropped below the normal range for the first time in five and a half years. I requested a CT scan after my third treatment, knowing I’d likely be recommended to add chemotherapy for the following round since my infections had cleared. I needed to know if my insides reflected how I was feeling—and they did! My doctors believe that the targeted immunotherapy was solely responsible for this miraculous turn of events. I have my own belief, which I attribute to a higher order I’d placed my bet on.

“I still advise you to do chemo and take advantage of this window to clear out whatever may be left of the cancer,” my oncologist continued. I’m incredibly grateful to have been matched with an oncologist who respects my decision-making process. For now, I declined the chemo, as my body is relishing the vitality that had been absent for so long. The thought of compromising my entire system, just as it was moving towards homeostasis, felt more like a risk than a benefit. However, I’m careful not to cling, as I need to remain open to pivot when necessary.

The only “barometer” I’ve put my faith in is the level of peace I feel in the choices I make. I’m talking about the kind of peace that can’t be manufactured for safety’s sake—the kind that is all-encompassing, a ‘yes!’ that I can fall into and feel held by. That’s what I felt after I declined chemo for my next round.

I’m learning that the only power worth giving is the Power I lovingly surrender to. Time and time again, I’ve been shown that when I do this, I’m being taken care of. I know when I’m not doing this because I feel a tightening around the reality I want to control. So, when I notice, I let go again and again, praying to be shown the way. The way has at times been scary, painful, confusing, and messy- it’s only from this vantage point that I can see the meaning in all of those experiences. This is what I need to trust as I keep following the way. This is what Da calls a miracle shift.

I hadn’t disclosed to my doctors the other ‘therapies’ I believe contributed to my ‘exceptional response.’ A fringe protocol, showing great promise as a cancer cure, came onto my radar last year. I began it as a last-ditch effort to make a difference on my own before seeking help from the conventional system. However, I didn’t use it long enough to give it a fair trial. The use of repurposed drugs—existing drugs originally developed for one condition but used to treat another—was gaining momentum and showing great promise for healing even the most aggressive and untreatable cancers.

The research I’ve done has given me enough confidence to test these therapies on myself, especially since, based on what I’ve gathered, they won’t interfere with the efficacy of my treatment and are relatively harmless. I’ve also been taking Artemisinin, derived from the sweet wormwood plant, often referred to as ‘herbal chemo’ due to its potent anticancer properties. Alongside this, I’ve maintained a steady regimen of herbal tinctures, teas, vitamins, high doses of anti-inflammatory supplements, and antioxidants to neutralize free radicals.

I also take time for my daily ritual of forest bathing and prioritize having meaningful, heartful connections. I can feel the power of the prayers from those who pray for me. I’m sure all of these have contributed significantly to my current state, but what I give the most credit to has nothing to do with what I put into my body.

My day begins with aligning my will with the greater will of God. It is only from this place that I can live fully and flourish, even with this disease. I need to recalibrate throughout the day because it’s so easy to get lost in our mortal predicament. So, I keep coming back, and I keep placing my faith in what I can never fully understand but can trust. I trust because I keep finding my way.

LESSON: PEACE IS THE CONDITION OF ALL MIRACLES- ACIM

Banner painting “Of The Same” by Maasa. In the spirit of our Sameness, we celebrate what can’t be threatened or taken away. What we thought we forgot is redeemed in the remembrance that was never lost. More of my art mine may be seen @ http://www.maasa.ca

CHAOS TO LOVE

by Maasaisis

The process of biological changes manifests as loud, outer expressions, screaming for attention. It’s so easy to be swept away by these acute sensations and fall victim to them. When my focus latches on, it’s like a ravaged dog clamping onto a bone, unwilling to let go. Escaping the madness of what all this could mean requires a quantum shift in awareness.

Now, both breasts are mutating. For months, I’ve been witness to the gruesome disintegration of a mass that, depending on my mindset, can look like healing or like cells spiralling completely out of control. My awareness has evolved, revealing just how easily I can be whisked into victimhood and pulled into dark, unsettling territory. This new lump on my other breast is a different cancer—its subtle emergence allowed it to slip under the radar of my current treatment. It is not hormonally driven which means I’ll have to consider an alternate plan.

The use of my right arm now has limitations due to the swelling of trapped lymphatic fluid under my armpit. This breast has shrunk to half its size as the tumour corrodes. My right wing feels taut, wrapped tightly, like it’s encased in saran wrap. I’m quite certain there’s tearing in my tissue from all the stretching thats causing the edema. The open crevice reveals a dark abyss where there is a battle taking place. The other day, I pulled out a piece of rotted flesh the size of a loonie, and the sight of it made me woozy. Is this process of tissue dying off a form of healing, or am I slowly breaking down?

Yesterday, nearing the end of a peaceful forest walk, a distressed call from my daughter coincided with my dog getting into a vicious dogfight, instantly changing my state. Whirling around, I stepped onto a slippery rock, sending my phone and legs flying into the air. I broke my fall with my good arm and went into immediate shock. It felt as if the opening on my breast ripped wide open, while pain shot through my shoulder and wrist on the other side. The tranquil forest suddenly became a stage for my screams, echoing alongside the brutal sounds of the dogs fighting—a symphony of chaos amidst the silent trees that my daughter heard on the phone lying nearby.

The thing with chaos is that it can feel like the entirety of time, pulling us into its trap. The dogs stopped when my boy, Apollo, sensed I was in trouble. Somehow, he knew I was more important than the fight and came right to my side, whimpering and crying with concern. I lay there, terrified of the damage beneath my bandage, now with both arms compromised. All I could think was, ‘Are you fucking serious? More pain?’ My mind quickly spiralled into blame—the wrong shoes, the dog fight, the phone call—but I caught myself and changed my mind. That road will take me nowhere but down.

Becoming something of an avid traveler in my mindscape, I recognize the familiar downward spiral. Each descent reveals traps and my entire existence hinges on if I can step over the traps and respond to life in an affirmative way. Can I find peace amid so many frightening, moving pieces? No, not always and not right away. What I’ve noticed is that when I strip everything down to this very moment, I’m okay. Nothing is imminently ending. If I separate myself from the pain as an external experience, I can find pockets of respite simply by being here.

As I type, each press of a key reminds me of what’s wrong with me, but I counter it with, ‘Well, at least I’m writing, at least no bones are broken, my boob is still in one piece, I’m eating, and above all, I am so deeply loved by so many.’ What’s truly scary is not knowing what will happen. Grounding myself in what I do know is the only solid counteraction I can hold onto. As long as I anchor myself in love without clinging to it as something I might lose one day, I have the magic antidote to get me through the toughest of days.

I have been stripped down in a way that has allowed me to love myself by truly accepting love from others. Suffering is the sickness of feeling utterly alone. I’ve finally allowed love in. I feel the sparkle of all my relationships shining bright like a lantern, guiding my way forward. In this torn-up world of differences, love is the only medicine. It’s the glue that binds us to life, enduring through whatever is thrown at us and staying with us always.

BATHING RITUAL

by Maasaisis

I’m watching blood trickle out in a steady stream, flowing down the curved contour of my breast and marking my torso. The crimson liquid bridges the realm from inside to outside, flowing from the large, mutant opening of my lump that resembles a miniature exposed brain. I notice a slight rancid smell of decomposition which quickens my heart rate so I distract myself by watching the flow. I’m in awe of how it keeps moving, assisted by force and gravity, into the bathwater, tinging it a slightly amber colour.

When we built our home, a big bathtub seated in an open space was at the top of my wish list. I meticulously laid out every tile surrounding the tub with slate, and we crafted a step into the tub from an open-faced timber slab. Ammonite fossils adorned the tiles, connecting me to ancient times and adding a personal touch to my sanctuary.

My evenings involve soaking in water that’s a little hotter than initially comfortable. I love letting the heat sear away the residue of the day, watching my skin redden against the wet heat. Perhaps it’s a Japanese trait ingrained in me from a culture that appreciates bath time as a ritual for rejuvenation, relaxation and cleanliness.

In Japan, public bathing in bathhouses with an assortment of soaking pools of various temperatures and qualities is woven into the culture. It’s a communal activity that fosters connection through the appreciation of a therapeutic soak. Both Sento, public bathhouses found in most neighbourhoods, and Onsen, which are fed by natural hot springs and often feature beautiful outdoor soaking pools, involve etiquettes and rituals. These are based on respect and tradition.

Going to the sento with my family stirs memories of early childhood, a time before I became self-conscious. I would alternate between going into the ladies’ side with Mama and the other side with Da until I reached double digits in age. Upon entering the bathhouse, I was greeted by the familiar fusion of aromas—mineral-rich water, herbs, soaps, and beauty products. An invitation to wash away the day and relax with strangers, buck naked.

At the enterance, there was a small booth where the person on duty collected our fee, which was a few hundred yen at the time, equivalent to about three Canadian dollars. The person was seated in the center of the division as the sole onlooker on both sides. My mom joked that whoever applied for that job must like looking at naked bodies. Naked bodies were a source of curiosity and quiet amusement for me.

I had no qualms about stripping down to reveal the stronger traits of my Caucasian DNA. I was accustomed to being stared at, even when clothed, simply because I didn’t look purely Japanese. At that time, with my spindly long legs and flat chest, I felt no shame and considered myself Japanese through and through, having been born and raised in the Land of the Rising Sun.

On the men’s side, It was amusing to observe the assortment of uncircumcised appendages of various shapes and sizes, though I made a point not to stare. Da, with his pale moon-white upturned arse perched on his long carrot legs, Scottish red hair, and his mushroom-tipped ding dong, drew most of the attention before they noticed the half-breed of the opposite sex in tow.

We knew the public bathing etiquette well and did our preliminary wash using the deep basin of luke warm water at the entrance of the large tiled bathing zone. Moving on, we selected our bathing stall from the lineup, each equipped with a seat, mirror, small basin, showerhead, tap, shampoo, conditioner, and body soap. Before sitting down, we ensured to clean the low seat of the plastic stool thoroughly. We proceeded with our detailed scrub down before choosing our first pool to melt into.

There are warm baths, hot baths, even hotter baths, herbal medicinal baths, detox baths, chilly baths, electric baths, and even outdoor baths at most onsens. I used to dip my toes and maybe even submerge my whole foot in the electric bath before chickening out, remembering the old lady who had a heart attack believing she got electrocuted.

Bath time for me is a ritual carried on from my childhood. I was gutted when I was told I could no longer soak in the bath—unless I poured a half bath and sat upright so my breast would float safely above the water. I couldn’t risk another staph infection from bacteria lurking in still water. Begrudgingly, I took to showers because it was too much of a tease to get in the bath without being able to slink back into a full relaxation pose, submerged, with my outstretched legs and heels perched on the opposite end. But after an exhausting day, I opted to at least give half my body the release it needed and witness the extent of my bleed.

My ongoing practice is to create a perspective that supports a harmonious state of mind. I felt mixed emotions of wonder and alarm about the volume of blood coming out of me. My Da, a doctor of Japanese acupuncture told me that Shaketsu or bloodletting is a practice to release blood out of a blocked meridian. A medicinal treatment to maintain health so I decided that is what my body is doing all on its own.

I remind myself that living in Canada, with readily available healthcare, is truly a gift. When I’m ready to get out, I call out to my husband for help to avoid getting blood everywhere. On the vanity across from the bathtub sits a basket filled with saline for cleaning, packets of antiseptic wipes, gauze, skin prep pads, blood clotting gauze, antibacterial silver mesh, and plenty of high-quality bandages designed for serious wounds. These were all provided to me for free by the local wound clinic, along with instructions from a nurse on how to care for ‘my little exposed brain on my boob.’ I can get more of whatever I need for as long as I need it. Today, I choose to be patient, curious, thankful, and keep my sense of humour intact. Today, I choose to count my blessings.

LESSON: MAINTAIN THE ESSENCE OF SACRED RITUAL EVEN IF IT HAS TO BE MODIFIED.

In Kyoto, Mama pregnant with me, and Da in his geta (traditional Japanese wooden sandals) and Scottish beard, which he kept until we immigrated to Canada.